Thursday, May 30, 2013

Good Video...but...

Good Video...but...

it says just part of the story of living with a Chronic illness as MS: a daily threat of just when will your immune system (your own protector) attack you again! it says just part of the story, but it does not give a clue about how it feels when you wake up one day BLIND! it gives no clue, of what it means to get a totally distorted body image after putting on 50 KGs following a pulse therapy in a hospital! it speaks not about learning the truth about our bodies! They are not who we are! it just totally ignores waking up every day, pulling yourself of bed, in hope, you will be a normal person for Today! This is a really good video, scientifically, but it does not get near, how an MS patient goes from day to day in vagueness and doubt. How he/she learns to live in fear; and cope with it! How he/she relates to MS; unintentionally! How unlike cancer, or any other acute illness that posses a limited in time challenge, chronic illness, changes a family! MS changes the whole structure of a family when it sets in! Now, there is the uncertain! The Unknown! "Will she be fine Today? Will he wake up able to walk? Talk? What about the mental-psychological state?" This article does not even come close to the side-effects of medications; of what it means when following 10000 ml corticosteroids (methyl-prednisone), you are one in a million of those in whom corticosteroids calls for a psychic change, and you end up for months suffering from bipolar symptoms; losing yourself in process! How you may loose so much privilege, just to understand you never really owned it in the first place! And the image you had built in years, breaks down in the glimpse of a plaque! How you go for MRI, and pray, in your heart, that against all science and all medicine, the plaques disappear or at least don't have a couple more! No, it is not dark out here! MS in itself is a privilege; like every challenge that GOD GIVES HIS creatures: it teaches lessons. You learn what it truly means to "not take for granted" No MS patient can take for granted "health" and "love"! You wake up Today, with a new symptom; that is totally unpredicted! It can be as vague as "just wanting to die"! To as massive as blindness/paralysis... Then you learn to really appreciate those days when you're "normal"! You learn to appreciate those who will live through your MS "emotional liability"! You will know you can't take them for granted, because trust me on this, there will be more of those who won't even care to know the name of your daily fight! Who will quit on you, as the signs of your struggle become more apparent! So, you'll know in the end who was true, and who meant it when he said "I love you!" and you'll see with your own eyes, who was just taking advantage of those healthy days of you When MS is in check by GOD'S MERCY AND WILL You'll learn the power of prayers! This video is GOOD...REALLY, REALLY GOOD! But it does not say how an MS can be the best thing that ever happens to you: as you learn the truth about "health", "life" and "death" and the essence of this live, with all its sparkles: illusive & elusive...

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